 Usher syndrome has taught me so much. We have good days and days that challenge us. This week has been filled with challenges.
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 I am sharing my story as a mother and professional researcher of two sons who have Usher Syndrome and are deafblind.
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AuthorLanya McKittrick is the Chair of the Board of the Usher Syndrome Coalition, co-founder of the Hear See Hope Foundation, and deafblind education researcher and founder of Lane of Inquiry. Lane received her PhD in Special Education at the University of Northern Colorado. Her research, advocacy and family support work are rooted in her personal experience as a mom to four sons, including two who have Usher Syndrome, the leading genetic cause of deafblindness. Archives
July 2024
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