Let US Help

Our goal with this site is to share my experiences in hopes that it helps others. Please contact us if you:

• Have ideas for an area of research that you feel needs explored
• Need help educating your community how to best serve the needs of students who are deafblind
• Want to train parents, educators or other professionals on the challenges facing students who are deafblind

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Research

I am pursuing partnerships with other researchers and organizations. If parents or professionals have an idea for research, I’d love for you to share. I hope you’ll view my list of current and past projects and reach out for more information. 

My research is rooted in my personal experience as a mom to four sons, including two who have Usher syndrome. My research interests include:

• collaboration and family-professional partnerships; 
• services and supports for students who are deafblind and their families; 
• self-determination; 
• student-led IEP’s; 
• post-secondary transition; 
• and inclusion. 

I have also been extensively involved in research focused on special education related to the most recent pandemic. 

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Advocacy

I am always looking for ways to share our story, through participation in webinars, podcasts, guest lectures, or presentations. 

In 2004, My husband and I founded the Hear See Hope Foundation to raise awareness and funding for Usher research and to support families through their Usher journey. Now, with my knowledge of special education law, disability rights, and deafblindness, I am an even stronger advocate for our community. I enjoy helping families advocate for their children and work with their IEP teams. I also enjoy helping school professionals better understand the needs of our children who are deafblind and our families. 

I hope that you’ll learn something from my research and our personal story.
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Training

I am open to sharing knowledge with others by leading training for families or professionals. I’ve presented on topics such as: 

• IEP Development,
• IEP Law 
• Collaboration within IEP Teams
• Parents: Building Leadership Skills you can use when working with your IEP team
• How to Promote Self-Determination for Students who are Deafblind
• The Benefits of Early Student Involvement in their IEP, 
• and Post-Secondary Transition for Students who are Deafblind. 

I also teach colleges courses in special education: IEP’s and the Collaborative Process, The Culture of Special Education, and Introduction to Special Education. 

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