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Experts agree that it is important to tell your child as early as possible when they have a disability. Children who are deafblind are often acutely aware that they are different from their peers and siblings, and it is important to give them language they can use to describe their experiences. By telling your child, you can help them understand the cause of their unique sensory experiences.
It is important to keep in mind that every child is unique and every family is unique, and there is no one-size-fits-all approach to this conversation. However, here are some tips to help you determine when to tell your child they are deafblind, as well as some strategies to make the conversation easier.
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Lanya McKittrick gives an overview of special education law, the components of an Individualized Education Program (IEP), and discusses implications for students who are deafblind. Watch the video: View the PowerPoint  I'm sharing resources to help education professional working with students with Usher syndrome navigate the IEP process. Video and PowerPoint presentation with resources links. Watch the video View the PowerPoint  |
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