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News & Events

Resource: Usher syndrome information from NCDB

3/8/2023

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A new NCDB product on Usher Syndrome, authored by Nancy O’Donnell, Outreach Director at the Usher Syndrome Coalition, is now available on the NCDB website. "Identification of Usher Syndrome: Information & Resources" offers a wealth of information on 
  • The types and characteristics of Usher
  • How Usher is diagnosed
  • The importance of timely referral 
  • National child count data 
Factsheets are also included with information specifically designed for educators, healthcare professionals, and families.
View the resource
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