A new NCDB product on Usher Syndrome, authored by Nancy O’Donnell, Outreach Director at the Usher Syndrome Coalition, is now available on the NCDB website. "Identification of Usher Syndrome: Information & Resources" offers a wealth of information on 

• The types and characteristics of Usher
• How Usher is diagnosed
• The importance of timely referral 
• National child count data 

Factsheets are also included with information specifically designed for educators, healthcare professionals, and families.

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Topics include:

• Article citing Lane's Research
• New LOI Board Member
• Call for help with research
• Training modules by Susan Bashinski

We're excited to welcome Amanda Dill, LMSW to our Lane of Inquiry family! Learn more about Amanda.

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Topics include:

• Re-post, "Why I started Lane of Inquiry"
• Research help needed
• Training series preview with Gwyneth McCormack

Inviting college students with Usher Syndrome to share their transition and college preparation experiences from high school into college to provide insights for families, educators, and professionals.

Recruiting participants for a doctoral research study who:

1. Have been formally diagnosed, identify, or self-report as having Usher Syndrome (all types).
2. Are currently enrolled in a community college, university, state college, or other postsecondary 2-4 year technical program in the United States.
3. Are between the ages of 18-30.
4. Willing to participate in an online interview, focus group session, and answer follow-up questions. Approximately 3-4 hours of time commitment.

 

• ALL communication modes are welcome. Researcher is fluent in ASL, TASL, English, Close Vision, etc. and interpreting/caption support also available.

 

• Participants will receive a $25 Amazon Gift card and a $5 Starbucks or Dunkin Donuts Gift Card for answering follow-up questions after the study.

 

• If you are interested in participating, please click on the link below for a brief intake survey or email the researcher, Tara Brown-Ogilvie, directly at Brow7715@bears.unco.edu

https://unco.co1.qualtrics.com/jfe/form/SV_5i4vTkRnzScS2PQ
 
An Institutional Review Board responsible for human participant research at The University of Northern Colorado reviewed this research project and found it to be in accordance with applicable state and federal regulations and University policies designed to protect the rights and welfare of participants in research. Protocol # 2205039020

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Topics include:

• New blog: "Feeling all the feels. the USH Conference and the Importance of Community"
• F2FC registration information
• CDBS Family Training webinar information
• Research assistance requests
• NCDB's Module 1 - Impact of Deafblindness on Learning and Development

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Topics include: 

• Blog post: "Reflecting on being a mom: the pandemic, transitions & self awareness"
• New resources: IEP considerations for parents of children with Usher syndrome
• NCDB Interveners video

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Topics include: 

• Blog post: "Help students reach new heights through self-advocacy"
• New research: Benefits of Student Involvement in Educational Planning

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Topics include:

• Blog: "Research Synthesis: The Benefits of Teaching Self-Determination Skills to Very Young Students with Sensory Loss"
• Covid Education Research re-post