The idea for this research study came about because of my experience as a mom to two amazing boys who are deafblind. This article is based upon my dissertation. I included the following vignette in my dissertation and I wanted to re-share it to give some context behind “my why”. Still when I read this, it makes me emotional. I know I am not alone and that many other families feel emotional when thinking back to any struggles in advocating for their child’s needs.
As I struggled on my journey to help my children who are deafblind get the education they deserved, I finally realized that teaching them to advocate for themselves not only resulted in success at school, but in life as well.
In the early months, when you know your child is struggling to learn but you don't know why, you can feel very alone. I know I did. Here is what I learned on our journey to getting support for my son.
I am excited to share my findings of my latest research study: The Importance of Family-Professional Partnership in Times of Uncertainty. A study of families with children who are deafblind during the COVID-19 pandemic.
As I was finalizing my research on the partnership between families with children who are deafblind and educational professionals during the COVID-19 pandemic, I was struck by the the critical need to keep open and frequent lines of communication to insure IEP success. Here are my takeaways.
Lanya (Lane) McKittrick is the Chair of the Board of the Usher Syndrome Coalition, founder of the Hear See Hope Foundation, and deafblind education researcher and founder of Lane of Inquiry. Lane received her PhD in Special Education at the University of Northern Colorado. Her research, advocacy and family support work are rooted in her personal experience as a mom to four sons, including two who have Usher Syndrome, the leading genetic cause of deafblindness.