 If someone had told me six months ago that I would be leaving a job I loved, I would have thought that was crazy. Those who know me well know how much I love my job. It's been rewarding to participate in COVID-specific special education research, and I know that the work has helped many and that my contributions have been valuable. But for the reasons I explain below, I need to make a change. I'm excited to have more time to focus on myself, my family, and deafblind research and family support.
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 September 19 is Usher Syndrome Awareness Day. It’s always a day that causes me to reflect on all that I am thankful for.
 As a research analyst at the Center on Reinventing Public Education, I've researched school/district response to the pandemic. I've interviewed many parents who have children with disabilities over the last six months about their experiences, and most recently, I've been tracking school reopening plans.
 I was asked to share my experiences and perspectives about remote learning for children who are deafblind, like my son Dalton.
I was asked to share my experiences and perspectives about remote learning for children who are deafblind, like my son Dalton.
 Being Conner’s mom is such a joy for me. He has overcome huge obstacles and works so hard to achieve his goals.
 Today I started the day in tears in my car, a reminder of the long emotional few weeks our family has been through.
 Usher syndrome has taught me so much. We have good days and days that challenge us. This week has been filled with challenges.
 I am sharing my story as a mother and professional researcher of two sons who have Usher Syndrome and are deafblind.
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AuthorLanya (Lane) McKittrick is the Chair of the Board of the Usher Syndrome Coalition, founder of the Hear See Hope Foundation, and deafblind education researcher and founder of Lane of Inquiry. Lane received her PhD in Special Education at the University of Northern Colorado. Her research, advocacy and family support work are rooted in her personal experience as a mom to four sons, including two who have Usher Syndrome, the leading genetic cause of deafblindness. Archives
March 2021
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