 The idea for this research study came about because of my experience as a mom to two amazing boys who are deafblind. This article is based upon my dissertation. I included the following vignette in my dissertation and I wanted to re-share it to give some context behind “my why”. Still when I read this, it makes me emotional. I know I am not alone and that many other families feel emotional when thinking back to any struggles in advocating for their child’s needs.
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 This is the time of the year when I like to reflect on what I’m thankful for. It’s been a really rewarding, yet challenging year.
 The pandemic challenged our way of thinking about education and, as I look back, I realize that the past year has given all of us opportunities to become better leaders.
 In the early months, when you know your child is struggling to learn but you don't know why, you can feel very alone. I know I did. Here is what I learned on our journey to getting support for my son.  This article was originally published on Paths to Literacy by Marnee Loftin, a retired psychologist who a wealth of experience in assessing students with visual impairments. This article was reprinted with permission from the author
New Research Brief: The Importance of Family-Professional Partnership in Times of Uncertainty3/18/2021  I am excited to share my findings of my latest research study: The Importance of Family-Professional Partnership in Times of Uncertainty. A study of families with children who are deafblind during the COVID-19 pandemic.  As I was finalizing my research on the partnership between families with children who are deafblind and educational professionals during the COVID-19 pandemic, I was struck by the the critical need to keep open and frequent lines of communication to insure IEP success. Here are my takeaways.  Looking back always gives me good perspective to look forward. While 2020 was a difficult year in so many ways, there are many positive accomplishments that should be celebrated in the world of deafblind education and research.
 I was asked to share my experiences and perspectives about remote learning for children who are deafblind, like my son Dalton.
I was asked to share my experiences and perspectives about remote learning for children who are deafblind, like my son Dalton.
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AuthorLanya McKittrick is the Chair of the Board of the Usher Syndrome Coalition, co-founder of the Hear See Hope Foundation, and deafblind education researcher and founder of Lane of Inquiry. Lane received her PhD in Special Education at the University of Northern Colorado. Her research, advocacy and family support work are rooted in her personal experience as a mom to four sons, including two who have Usher Syndrome, the leading genetic cause of deafblindness. Archives
July 2024
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