 In the early months, when you know your child is struggling to learn but you don't know why, you can feel very alone. I know I did. Here is what I learned on our journey to getting support for my son.
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 This article was originally published on Paths to Literacy by Marnee Loftin, a retired psychologist who a wealth of experience in assessing students with visual impairments. This article was reprinted with permission from the author
New Research Brief: The Importance of Family-Professional Partnership in Times of Uncertainty3/18/2021  I am excited to share my findings of my latest research study: The Importance of Family-Professional Partnership in Times of Uncertainty. A study of families with children who are deafblind during the COVID-19 pandemic.  As I was finalizing my research on the partnership between families with children who are deafblind and educational professionals during the COVID-19 pandemic, I was struck by the the critical need to keep open and frequent lines of communication to insure IEP success. Here are my takeaways.  Guest author and Lane of Inquiry board member, Nilam Agrawal, shares how remote learning due to COVID-19 fundamentally changed how her daughter, who is Deafblind, is learning to read.
 Looking back always gives me good perspective to look forward. While 2020 was a difficult year in so many ways, there are many positive accomplishments that should be celebrated in the world of deafblind education and research.
 If someone had told me six months ago that I would be leaving a job I loved, I would have thought that was crazy. Those who know me well know how much I love my job. It's been rewarding to participate in COVID-specific special education research, and I know that the work has helped many and that my contributions have been valuable. But for the reasons I explain below, I need to make a change. I'm excited to have more time to focus on myself, my family, and deafblind research and family support.
 September 19 is Usher Syndrome Awareness Day. It’s always a day that causes me to reflect on all that I am thankful for.
 As a research analyst at the Center on Reinventing Public Education, I've researched school/district response to the pandemic. I've interviewed many parents who have children with disabilities over the last six months about their experiences, and most recently, I've been tracking school reopening plans.
 I was asked to share my experiences and perspectives about remote learning for children who are deafblind, like my son Dalton.
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AuthorLanya (Lane) McKittrick is the Chair of the Board of the Usher Syndrome Coalition, founder of the Hear See Hope Foundation, and deafblind education researcher and founder of Lane of Inquiry. Lane received her PhD in Special Education at the University of Northern Colorado. Her research, advocacy and family support work are rooted in her personal experience as a mom to four sons, including two who have Usher Syndrome, the leading genetic cause of deafblindness. Archives
November 2022
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